June 20th 2015 was a day
Robert Bailey V will never forget. That was the day he was informed of his
diagnosis of AL (Amyloidosis), a rare plasma cell disorder. Bailey who is known
around the non-profit world in Providence as an advocate for children and
families in transition, has worked at Casey Family Services, Amos house and has
served on several boards and organizations that work with Rhode Island
Rob remembers having foot pain,
stomach issues, hypotension and fatigue prior to his diagnosis of Amyloidosis.
“It rocked me initially but after some research and great medical advice, I
agreed to some ground breaking treatment which has made me a new man, with a
renewed dedication to help people especially those fighting Cancer”.
You see Rob is a survivor and now an
Ambassador Constituent Team (ACT) Lead with ACSCAN of Providence Rhode Island.
In his current role as an ACT Lead he assists in the implementation of local,
state and federal advocacy activities in Rhode Island to reach ACS CAN research
goals and impact public policy.
One of Rob’s goals is to get the word
out to the minority community and others about the importance of Cancer
screenings and the need for more of us to seriously consider helping in the
fight against progressive diseases’. “The
fact that there is much to learn about the fight against Cancer and we need to
do more. We need to participate in medical trials as a way to advance medical
research. We need to participate in Blood drives and be live organ donors. The
minority community needs to step up and get involved”
Hence Rob’s work with ACSCAN. This
year's event discussed the groundbreaking strides seen in cancer treatment
and care. Our speakers will highlight the impacts of innovation
from across the spectrum of stakeholders, from researcher to patient. This
year's program featured Senator Jack Reed, Dr. Howard P. Safran, Chief of
Hematology/Oncology at the Lifespan Cancer Institute and Dr. Paul A.
DiSilvestro, professor of obstetrics and gynecology at the Warren Alpert
Medical School at Brown University and the director of the Program in Women's
Oncology and the Division of Gynecologic Oncology at Women & Infants
The American Cancer Society
Cancer Action Network (ACS CAN) is the nations' leading advocacy organization
working every day to make issues facing cancer patients a national and state
priority. Whether it is increasing cancer research and prevention funding
or improving access to health coverage, ACS CAN protect the needs of
patients and families, working to ensure that our innovation ecosystem remains
strong and everyone has the access to care they need to prevent, detect and